Social Question

deliasdancemom's avatar

Does anybody have experience with agoraphobia?

Asked by deliasdancemom (1314points) December 11th, 2010

Does anyone suffer from, or have a close loved one that suffers from agoraphobia? If so what medications/therapies have worked for you/them if any….and how severe is the agoraphobia?

I can leave my house within a small distance with certain “safe” people for short periods of time, longer distances and longer periods of time with my husband…however I am confined to my own property alone and have had a handful of episodes where I was unable to get past the front door.

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15 Answers

anartist's avatar

I knew a very nice woman once who had been badly abused by an ex-husband. He threw her in a dumpster when he left. She sought refuge in the house of a woman friend who was a hoarder and she adjusted herself to living in a room in her friend’s house which was full of stacks of newspapers that left only paths in the rooms. She even developed a business there to support herself. She made catered dinners for people would pick them up. When her friend died, she was hospitalized, but still optimistic. I have not seen her in years, but hope for the best for her. She had a lot of guts and probably made it to something better.

ETpro's avatar

My wife has a touch of agoraphobia. She starts getting nervous when we’re in an area where it would be difficult to call for help, or for help to get to us even if we were able to summon it. The best antidote seems to be

WillWorkForChocolate's avatar

I’ve often wondered if I might have a mild case since I strongly prefer to be in my home. I literally dread going to the grocery store or taking my kids to their gymnastics activities. I hate having to leave my house. I don’t go into panic mode or anything, but I feel really stressed and overwhelmed until I get back home and breathe a sigh of relief. It’s funny, but the only time I really relax while I’m out shopping is if I’m surrounded by purses, wallets or shoes. I don’t know why, but it seems that satisfying my “purse fetish” takes my mind off of my worries and I start to enjoy myself.

I’m not sure about treatments, since I’ve never even attempted to have it diagnosed. Maybe I’m just really anti-social though, I have no idea.

deliasdancemom's avatar

@WillWorkForChocolate you sound more like my mom, no problem really going out but perfer not to…not because of fear but because she just doesn’t care for people in general. LOL

live_rose's avatar

I have agrophiba induced over time from my agraphobia, so i can go outside so long as I can avoid people. I do go to therapy and have on and off been on meds, but I tend to resit treatment not purposefully but my subconscious is saying “This isn’t safe don’t peruse it, people are looking at you judging you. go home, stay safe.” So it should be working, but my hesitance and a bit of laziness keeps it from succeeding. So I just avoid leaving my room and home as much as possible, I’ve learned to accept and adapt to it. Not exactly a motivational story sorry.

deliasdancemom's avatar

That’s okay, thank you…I do the same thing, I force myself to leave from time to time because of my daughter but I avoid it as well when I can….I take medication that helps a lot, as far as therapy goes so far I have yet for anything to work….a good part of it is probably my ego…I have to admit I don’t have much faith in what a person with a 4 year education degree can tell me about myself I don’t already know

augustlan's avatar

I think I could develop agoraphobia, if it weren’t for the fact that I have 3 kids who make it necessary for me to venture out into the world. I was once confined to my home for about 3 months after I was hit by a car in high school… had home tutoring, but couldn’t really go anywhere. When I went back to school, I had such bad panic attacks that I would run out of the building and eventually dropped out due to it. I’ve had my general anxiety/panic attack disorders pretty well under control for several years now, but the only thing that really worked for me was medication. I’ll be on them for the rest of my life, and I’m totally ok with that. In your case, I’d imagine that meds plus desensitization would be more appropriate. I wish you luck!

BarnacleBill's avatar

I have problems with crowds, and generally avoid them. I avoid events with lots of people. The idea of attending an outdoors concert, like Bonnaroo, or large sporting events, makes me really anxious. Airport and mall parking lots, with all the cars, are problematic as well.

JustJessica's avatar

I suffer from agoraphobia, and PTSD, and sever anxiety/depression. I’m currently on medication and cognitive-behavioral therapy. Like you I’m only able to leave the house for short amounts of time with certain people going to certain as you say “safe” places. Last week I had a huge breakthrough and went to my youngest sons Christmas program, It was hard, but I pushed through. I thank my therapist for that!
You have to be willing to open up and actually take suggestions from a therapist, I know I fought it for a long time, but after a year my walls are finally coming down and I’m trying things she is suggesting.
I hope you can find a therapist that works for you, it’s important to feel totally comfortable with them, sometimes it takes a while to find the right one. My goal is to someday walk amongst the “living” and not be petrified.

bunnygrl's avatar

Honey you absolutely can get over this. For nearly 2 years I couldn’t go outside on my own. I would shake, cry and the fear was overwhelming, sickening. That was the part I couldn’t explain to anyone, not even my hubby. What was I afraid of? did I think the world was dangerous? did I think there was someone waiting to hurt me outside? Did I think I would be attacked/murdered/etc? no to them all. I was simply engulfed in this wave of fear at the thought of the outside, and it was so strong it completely incapacitated me.

After almost two years of living (not living, my world was the size of my house) I made a concious decision that I wanted it to stop. I wish I could tell you that I took a magic pill, clicked my heels together twice and have been fine ever since but it just doesn’t happen like that honey. I can remember leaving marks in my hubbys arms with my nails because I was gripping his arm so tightly (and what did he do when this happened? he used his other arm and wrapped it round me so tight till I felt safe again). I remember opening the front door just a little when he was at work and peeping outside shaking and gripping the door so hard it was as if the world would fall away if I let go. Eventually, after what felt like such a long time, I was able to open the door and sit on the bottom of the stairs (which faced the front door) and look outside. Not actually go outside though, there was still an invisable glass wall, a force field of my brain’s making, across the front door that kept me prisoner.

All this time I would be making (very) short accompanied trips outside occassionally, but during the day when I was alone except for my fur babies, I would set myself these goals. OK, today I’ll manage to have the door open for 5 minutes while sitting on the stairs. What if tomorrow I try for just a minute or two longer? Eventually I was able to stand on the door step. Again building up the time I could be there. Then it was standing on the first paving stone of the pathway to the door. You get the idea? I reached the garden gate and could stand there (gripping the gate so tightly I would hurt my hands, but still it felt like such a victory). That led to opening the gate just a little, to walking to the nearby lamp post, touching it and walking (running) back to the safety of the garden and the house. As I said, it was a procession of little tiny victories which took me a little at a time ever so slightly further outside of “my world”. There was the local library at the end of our road at the time and I remember the day I reached it, I held the corner of the building, shaking and crying because I was happy/scared/god knows what. I did it again the next day, and then the next again, and this time I went inside and sat down on a chair (fell into would be more accurate) in a little reading area. I must have looked a sight because one of the librarians came over, she was such a sweet lady. I remember she came over, looked at me, then pulled out a chair and sat down next to me, then she did the kindest thing. She put a hand on top of one of mine (both my hands were on the table in front of me and were shaking terribly) and she said “well, you made it”. I couldn’t even say anything to her and I didn’t even have to. She said she’d seen me twice, (the last time had been the day before). She told me the first time she’d glanced through the glass doors and had noticed me, and had watched but instead of coming inside, I had just stood still and held the wall, and then turned round and walked away again. she said when she’d seen me do the same thing again the day before, she had guessed what I was doing, and she’d hoped I was going to come inside. She squeezed my hand again and said “well, you’re here now” and I just cried and felt very stupid. This lovely lady who didn’t even know me, handed me a cotton handkerchief from her pocket and told me about her sister. She told me her sister had been ill for a long time and had gone through a similar process but now she worked in an office in town and I’d beat it too. “and besides” she said “now you’ve got a friend to visit”.

The next day, I had a mission. I had carefully washed and ironed her cotton hankerchief and set off to return it. Which I did, and we talked, I thanked her and told her how grateful I was for her being so kind, and told her a little about me, what had caused me to get ill, how hard it had been to do stuff that other people did. She asked me what my next goal was. She said I should think of the library as part of a chain, and I should try to keep making the chain longer and longer. I should pick somewhere now, pick a shop (when you turned the corner out of our street there were a few little shops scattered around, as well a local council office, an estate agent etc). She said to pick one each day to achieve, but not to forget that I had the library as a “safe place”. Nearer to where I was headed than home, so that there wasn’t the feeling of panic that set in when home went out of sight.

That lovely lady helped me so much and I always think of her as proof that angels do indeed walk amongst us. No matter what your thoughts on religion, there have always been people who appear in your life just when you need help the most. Not all angels have wings honey, some of them have very kind eyes and a cotton handkerchief just when you need it. It took me almost another two years to be able to pull on my jacket and go outside on my own, and my next goal was then to get back to work again. I won’t say that it’s all gone, because I still get the wibbles very occassionally, but I have been over four years in my daft little part time job and if I can do it honey, so can you I promise <hugs> xx

anartist's avatar

Is this an illness that affects women primarily? I see [as far as I know] no men expressing any problem with this issue. If it is primarily a woman’s problem, why is that? Part of cultural preconceptions like “a woman’s place is in the home”?

deliasdancemom's avatar

Thank you bunny that was a wonderful story….anartist, it is more prevalent among women but many men suffer from it as well…my agoraphobia stems from childhood trauma as it does for many, this isn’t something limited to gender, but a lot of people I have met (certainly not all) have endured the same trauma I have…and sadly this is one that is more likely to happen to a woman

bunnygrl's avatar

@deliasdancemom I agree, sufferers do seem to be mostly (but not exclusively) women, and yes, we do all seem to be linked by having had to endure destructive trauma in our lives. I don’t think it has anything to do with how strong someone is either. After I had my breakdown, I used to think I was rubbish, I was weak, I wasn’t worth anything because I had two friends who used to make fun of me all the time (“well, I don’t have a mental illness” or “everybody else copes, you just want attention”) this added to their nigh on constant jokes about my weight gain (used to run everywhere my whole life, severe arthritis took that away and “puff” I became a human punchbag for toxic friends). Well, I suppose that made me determined that I wanted a life back. Even if it was only a little one.
hugglys xx

deliasdancemom's avatar

What horrible “friends” I luckily have a wonderful supportive hubby who is my best friend…I am also lucky to have some kind caring friends as well….I get out enough to give my daughter a normal childhood, I refuse to let my problem take that

bunnygrl's avatar

@deliasdancemom I’m so glad for you honey, because I know that I wouldn’t have made it without my “other half”. He’s always been my “fixed point” that never moves, never falters. I know I can depend on him when I’m not feeling so strong myself. By the way, those “friends” and not a part of my life anymore, there is enough poison in the world already without allowing it to sit on your couch and drain your energy lol. I think that you’re a wonderful role model for your little girl honey, she’s very lucky to have such a strong, determined mother.
huggles xx

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