Are there any flutherers that are dealing with a chronic autoimmune disease?
Asked by
gravity (
3116
)
August 16th, 2011
I am actually more struggling instead of dealing with it. I was diagnosed with chronic Epstein Barr Syndrome and have had symptoms since Jan 1st of this year. It is like I have mono 2 or 3 weeks out of the month. It is all I can do some days to climb the stairs to my apartment. I am taking B12 shots about every 8 days but they don’t seem to help much. I don’t see the doctor until Aug 30th and I hope he can help me deal with the symptoms; sore, red, irritated throat with white streaks, swollen lymph nodes, headache, fatigue. I feel like I have strep throat, but I don’t. Any other suggestions from another flutherite? I get plenty of sleep and try to stay hydrated but don’t always drink enough water. What effect does alcohol intake have on this? Thanks for any ideas or help.
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6 Answers
I am diabetic and have MS.
When I was diagnosed,I read as much as I could and am very active in taking care of myself.
Knowledge is power.
I have multiple auto-immune problems (the most serious is kidney disease), and fibromyalgia (which I suspect is related). My best advice echoes @lucillelucillelucille.‘s Read everything you can (taking it all with a grain of salt) and be informed about your condition. Be an active participant in your healthcare, and take it easy on yourself.
I agree with Lucy and Augustian that knowledge is your power, when you have any disease.
My daughter has Lupus and she has worn her computer out, looking for anything see can read about Lupus.
It’s taking a toll on her and she is coming back home, so her parents can help to take care of her. She takes daily injections of her medications. She is a fighter and so should you.
Yessir, ulcerative colitis here. I don’t know much about what you have but it sounds challenging to deal with, I’m really sorry.
The one thing I’m going to say about reading, especially on the internet, is that you can get yourself mighty depressed reading about all the worst case scenarios that people put out there sometimes. One website I do like, however, is ButYouDontLookSick.com.
Distract yourself with things that make you happy as much as possible.
I have been diagnosed with Multiple Sclerosis for about 20 years… like Lucille I read loads of books when first diagnosed…. it’s not the best thing that ever happened to me but it’s not the worst either, it never ceases to amaze me what I have dealt with and continue to deal with, I have discovered a previously unknown resilience and strength, not that I would recommend my situation…
I have arthritis, good luck with coping. I have to remind myself frequently to be glad for the good things. Alcohol will dehydrate you and make your body work hard to rid itself of what it sees as poison. It must be hard to eat right if your throat hurts so much. Do you use Boost or that type of thing? Some are really okay.
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