You may have to explain the agoraphobia problem to them separately or as a group. My sister in law, who has never said that she has agoraphobia (although my poor brother has used it as an excuse for her for years now) never comes to family events, never calls and always has a reason for why she can’t attend or participate, yet she’s never told us (and it certainly doesn’t appear that she has agoraphobia) that she is agoraphobic.
So unless people are told, that you are agorphobic, they’re just going to assume that you’re being rude or crazy or whatever. I’ve had to explain to many, many relatives why my SIL won’t be attending their wedding, birthday party, Christmas gathering, picnic, trip to theme park, dinner party, so and so’s going away party, so and so’s graduation party, baby shower, bridal shower, visit them in the hospital. Unfortunately I don’t have an answer, because she’s never told me or anyone else that she’s agoraphobic and she doesn’t seem that way at all. She has a job where she’s with lots of people, visits her own family members on her side and has a few girlfriends that she does things with, but anything to do with my brother’s family (and we’re all very pleasant, no people constantly asking personal questions, no one ranting about politics or religion, we mostly get together to hang out and eat) she never participates. I’ve had several relatives ask me if they’d done something to offend her.
On the other hand, one of my aunts, has told us, or she’s told us through her daughters, that she does have agoraphobia and she exhibits all of the symptoms. So we all know that she suffers with this problem, but she also likes to have company, occasionally. So we go to her, and know to exect that she won’t/can’t come to us. My SIL, on the other hand has made it pretty clear that she’d rather not have any of us come to her either, but no explanation has ever been given as to why. I’m still guessing myself, but I don’t think it’s agoraphobia.
I think you have to come up with a way to let everybody know your situation, and you may have to repeat it over and over. Just like I always have to remind everybody that I’m still a vegetarian and have been for the past 25 years. It kind of makes me laugh when my cousin acts like I’ve just told her that for the first time and she’s shocked and embarrassed. And then throws in, “That must be hard, what do you eat?” Oy vey!
You may want to send out a short sweet e-mail or Facebook posting or even cards, to all of these folks saying the same thing. Dear Relatives, I want you to know that I love you all and I enjoy your company. I hope you don’t find me rude when sometimes I have to beg off. Some of you may already know that I suffer from agoraphobia and that means I have a lot of fear and anxiety when it comes to social situations, so sometimes it’s not easy or possible for me to visit or go outside or to travel and sometimes I can only manage to experience social situations on a limited basis. But that doesn’t mean that I don’t want and appreciate your company, because I do, and I love every one of you. I just want to know that I enjoy your company and phone calls, but unfortunately, it’s easier on me, emotionally, to have you come to my home, rather than for me to venture out. Just wanted to let you all understand a little bit more about me, and hope that I haven’t offended any of you. Please don’t hesitate to call me or plan to come and visit me, I just wanted to remind everyone of my unfortunate limitations, because some of you have been asking about why I don’t come over as often. I hope you can understand. Love @DigitalBlue