@HULK She actually has swelling? That is unusual. My think is I have muscle pain all over, every muscle, when I use the muscle briefly. I wake up just fine, no pain, but just the smallest amount of use back when I was at my worst and I had severe problems. If I gardened for an hour my muscles in my arms and especially my lower arm began to ache and my hands would shake so hard I could not hold a glass. I looked like I had Parkinson’s. Bit after an hour or so it would revert back to nor al. If I held a phone to my ear more than 5 minutes my bicep cramped so bad I was in agony, severe Charley Horse. If I walked for a couple hours my legs got shakey and I worried I might fall down. I used to work retail on my feet for 8–12 hours a day moving merchandise, this was a huge change for me. Anyway, it is every muscle. If I chew gum too long, Jaw muscle problems. The doctor would touch trigger points that fibromyalgia (FM) patients have and ask if it hurts. Yes it hurts, but it hurts any muscle you poke on me. I went toa neurologost at one point and he told me I was normal and I should exercise more. At that point I exercised regularly. I had not been exercising for a while before that and peope told me to exercise and build up muscle strength. I can tell you exercising did nothing for my pain, exercise risks pain for me. I did get a little stronger again though.
Story about vitamin D: I had started taking it, and correcting my thyroid numbers with meds, and increasong my iron levels with supplements, all at once. I began to feel much better, but doing everything all at once who knows exactly what is helping what. I truly believed my thyroid was the biggest problem. As I felt better my doctor and I decided I would stop taking the prescription vitamin D, because I don’t like taking hige doses, and go back to OTC 2,000 IU daily to maintain the levels I had acheived. Maintanance v. raising levels. At about the 6 month mark I had deteriated, could not get through a zumba class, much of my pain had returned. We ran several tests and the D was very low. I went back on D, now with everything else was constant, and once again returned to feeling much better. So, I finally narrowed down D was vital for me.
Does your friend avoid the sun? Is she very pale if she is caucasian? SPF in lotion and cosmetics and wearing clothing block vitamin D absorption. Dark skinned people also have great risk of D dificiency if they are not in the sun a lot, and they need to be in the sun longer than fair skinned people for vitamin D. I really believe maybe I pushed off or avoided MS, Parkinson’s or some other neuromuscular disease diagnosing my D dificiency, but that is not proven by science. However, in the US, MS is clustered more in the states in the upper midwest which lack son, and the midwest back in the day was the goiter belt, which mean thyroid dysfunction belt. I called stouffer’s frozen foods and Campbell’s spups when I found out my thyroid was malfunctioning and they do not use iodized sodium. I’m guessing most of the packaged food we eat is not iodized, and doctors don’t check iodine levels much anymore they just prescribe synthroid.
But, muscle swelling is a symptom that I cannot explain, I don’t know enough medicine. If the swelling was in lower extremities I would say heart, kidney, or maybe gout. Although, Gout can occur in joints above the toes, have they checked her uric acid level for gout? That is extremely painful when it flairs up.
I beg of you again, make sure they have checked her vitamin D, that is not a commonly done test, although becoming more common, and ask about the gout possibility, if they did that test or if the doctor doesn’t think it is gout for other reasons maybe. My knowledge of gout is limited.