I was in this situation a bit less than a year ago. I had found a boyfriend, it was getting serious, and I had a recto-vaginal fistula. I had tubes in the area and a lot of pain.
I didn’t handle it the best. For fear of sounding like I was accusing him of only dating me for sex, I didn’t mention that it was off the table until the first time he brought it up. I realize that was a mistake, I should have gotten it out of the way early. He was surprised; he knew I had health problems but he did not know they were going to interfere with our sex life.
He wanted to know if there was any kind of time frame. I told him no. My doctor had no estimate for when it would be healed. Fistulas tend to take a long time. I told him not to keep his hopes up for that. I did say I was totally comfortable with foreplay and maybe we could try finding satisfaction that way. I also told him I understood if he wanted to leave.
He didn’t want to leave, but he wasn’t satisfied with that answer, really. He said we could try other stuff and see how that goes (we were both virgins).
We ended up trying oral sex for awhile and it was “okay.” It did the job but he really wasn’t satisfied. He started asking me about anal. He thought he had found the magical solution to all our problems. I was really uncomfortable with the idea of anal, mostly for health reasons. He had googled and found a site claiming that people with my condition can have anal sex, but I didn’t feel safe about it at all. The fact that I didn’t have a “solid” reason to turn it down bothered him. He got really naggy for awhile, which was unacceptable to me – I thought he should accept my answer for what it was. I guess he felt I wasn’t doing everything I could to find a solution to our problem. I asked him to come over with the intention of breaking up with him. I was angry and upset.
When I saw him, I didn’t want to break up with him anymore. He didn’t want to break up either, but he was frustrated. We didn’t want to end it but we didn’t know what to do. By this point I had had the tubes removed from my vagina and wasn’t having much pain anymore, but I still had the fistula and was terrified of doing anything to aggravate it. We made a game plan. I was to ask my doctor what the risks were with having sex on a fistula and make an informed decision from there.
My doctor told me to go for it, essentially. He even consulted a surgeon friend of his and they agreed that there was very little risk. I was still scared and our first “time” ended with me crying. I’m not fully convinced I did it for me or because I really wanted sex, but rather to save our relationship. And it did. I know that was probably wrong but that’s what happened.
I’m still with him. We have sex on a regular basis with no ill effects on my health. I am mostly past the mental block I had and am not scared of sex anymore. I’m still not terribly into sex. I think I just have a very low drive. His is much, much higher than mine, and we still have a bit of trouble figuring out how to handle that at times.