@Cupcake Sorry ahead of time for the length of my response.
You really have been through a storm. I can only imagine. I read through what you wrote, but I’m unclear on a couple of things. I was going to suggest giving the baby some Lactaid (anything I recommend you would have to check with your doctor or at minimum read the labels if it is safe for infants) but you say the baby is on a dairy free diet now, and I honestly have no idea if human milk responds to that drug. I assume you tried antigas meds in case it might be that.
It’s pretty frustrating to me that the pharmacy didn’t clearly mark that the medication you tried for a while needs to be given on an empty stomach. It’s a horrible lesson to learn while caring for an infant in pain. All medication for all ages people we should confirm if it needs to be taken on an empty stomach or not. It’s the first thing I check. That and if it is necessary to avoid dairy, avoid sun, and if it specifically states to take the medication with plenty of water. Those are all more important than most people realize.
I’m in the camp that dairy is bad for us, so if you can live dairy free more power to you. I was dairy free for months at a time on and off for about 5 years, and I think I was healthier without it. I need to get back to it. Obviously, you just need to make sure the baby gets vital fats necessary to grow and be healthy, which often in America is from dairy foods. It sounds to me like you are a sponge of information, so I don’t doubt for a second you are doing everything possible to ensure he gets the necessary nutrients.
I hope you don’t take this the wrong way, but you remind me of 4 of my close friends. Three of them felt very strongly about Catholic school for their children, the other just about private school in general. Possibly, they even judged other parents as not doing the best for their kids if the children went to public school.
Each of the Catholic friends during the elementary years of one of their kids had to deal with the decision of putting their child in public school. In one case the child was getting into trouble a lot and pigeon holed by the teachers. Another friend the child wasn’t fitting in very well and felt picked on. Another had more opportunities to follow her interests in public school. All of my friends were nervous wrecks deciding to put their kids in public school. They called me and told me how they cried about, afraid, even angry. They were becoming the mom they never thought they would be. All three children did better in public school in the end. One will be going back to private for high school, but not because public had been bad for him.
I think those moms had a crisis of their world being out of joint. Cognative Dissonance. They had decided way before their children were ever born what is good and bad regarding education and now they were about to opt for what they had decided was inferior. It was extremely hard for them, and I think maybe you are going through some of that. You are holding onto what you decided was best, but you couldn’t anticipate what would happen. My 4th friend is Christian and took her son out of private school in high school, and home schooled him, because she was convinced she would be seen as an awful parent to put him in public school, and in retrospect she wishes she had tried it.
I don’t know if the breastfeeding is the problem for your baby or not. It sounds more complicated possibly, but I hope if you choose to stop breastfeeding, if it is causing some of the problem, that you give yourself a break. It’s ok. You’re a good mom. I have no doubt in my mind you have bent yourself into a pretzel trying to help your baby with great sacrifice.
As far as your doctor, I don’t know your full history with her, but I’ll tell you something about me. When I ask a friend or acquaintance for a referral to a doctor I ask them if they have health problems. If they live their GYN, but never have a health problem down there, then I have no idea how that doctor handles difficult health problems. Same for your pediatrician if she has been great for you for very straight forward sickness and well visits. That’s a whole different ball game.
I hope you find answers soon. The best would be if your baby just grew out of it all tomorrow. Here’s hoping.