I too had biopsies, and had a diagnosis, and used topical steroids, and in the end antibiotics were my magic pill. That doesn’t mean your situation is the same, in fact if you have a definite diagnosis of a known disease, and the treatments help, I certainly am not trying to tell you to not do the treatments. Steroids did give me some relief when things were very bad, and I happened upon an effective antibiotic by chance after years of pain, which might have never happened. I was just short of obsessed with believing there was an underlying cause, because of the total of my symptoms, and in some ways that “obsession” hurt me, and in some ways it helped.
If you get a bee sting and you’re allergic, the body overreacts to the pathogen and instead of a small swelling at the site of the sting the hystamines in the body can swell lots of tissue and even hamper breathing and kill the person. The allergic person dies, and I get the same sting and just have a small annoyance for a couple of days. That’s an example that is not infectious. Lymes disease and stomach ulcers from bacteria are examples of infectious diseases previously thought to be autoimmune with no infectious component.
@cazzie brought up her Graves’ disease, and I too have skin troubles when my thyroid is under or over medicated. I get a subtle rash, it doesn’t feel subtle, on my neck, upper chest, and it can start to crawl up my chin and cheeks. My eyes get very dry, my hair starts to fall out. I must have been tested for Sjogren’s and Lupus 3 different times. I developed some sensitivities to some soaps, latex, and some natural ingredients. I had contact dermatitis testing done and not one reaction from any chemical, except the strips that were holding each chemical
In place. I think part of the sensitivity was similar to when orange juice stings your throat if you have strep or a virus, but otherwise you can drink orange juice just fine.
I certainly am not telling you to ditch what the doctors are advising, I’m only saying over time you might learn new things about the disease through new doctors and patients. It sounds like you are doing just that.
I personally tend to not like “natural” promises that are untested, but some diet changes are probably worth trying if they seem within reason. Things like thyroid, vitamins and mineral you can have tested with a blood test before popping pills.
I would be pretty sure your doctors already tested your thyroid, but I encourage you to look at the numbers yourself. If your T3, T4 or TSH is near the end of normal in either direction, or outside of normal, I would see an endocrinologist.
I tell all people, especially women, to have their B12, D, and iron checked. Most likely your iron or CBC has been checked many times. B12 and D possibly not. If you aren’t tan (darker from the sun not matter what your skin color) you are likely D deficient. If you deficient in any of these things it doesn’t mean getting the numbers to normal will be a perfect cure, but I think
It can help.