I, too, am sorry to hear about this. It is the kind of bad fantasy that I think about far more than is healthy for me. I’m only 53, but far too many of my friends have already succumbed to various kinds of cancers.
I’m also sorry that you feel like you have a hard time telling your family about this. I suppose you believe you are protecting them, but could this be about you also trying to protect yourself? This kind of news is the nightmare of anyone who has ever heard about this kind of illness. It is perfectly understandable that it is hard for you to take in.
As far as I can tell, what people find most helpful when their days are numberable, is to be surrounded by supportive friends. Some people find friends amongst the people they know in real life, and others online, and others in both places. My friend with pancreatic cancer had a whole community of support. They arranged for people to sign up to visit her, so that she had people to be with every day. They set up a Care Pages account to post news on, so she didn’t have to tell the same story five million times.
She told me that one of the hardest things was that, often, she felt like she had to comfort the people who visited her. They had a harder time with her diagnosis than she did.
People do have a hard time. We don’t know what to talk about. We are thinking about death, but don’t feel like we should talk about it. We know we will miss you, but we haven’t had the need to think about it the way you have. Being with you is confusing because of these things. We all want to do the right thing. We want to be helpful to you, and yet, it seems like no matter what we do, it won’t be perfect.
As @Jeruba mentioned, this community has had an experience with someone who has been fighting cancer for at least two years. She has informed people what’s going on, and garnered a lot of support. She, like you, has just been honest about it. Not the “poor me” kind of outlook, but the “just help me deal with it” outlook. People like to support each other here, and do the best they can to do that. Maybe too much, at times, when everyone wants to send cards or whatever. It can get overwhelming, unless someone else takes charge of organizing it, and is a kind of buffer between you and the community, only letting through that which does not overwhelm you.
I don’t really know. Everyone is different in how they respond to these things. I don’t know what the right thing to do is. You have to tell me, if you even know. People want to do the right thing by you, whatever that is. I’m sure family will want to enjoy as much time with you as they can. People always want to be able to say goodbye. It helps them come to peace after they lose you. Often, though, they walk on eggshells, afraid to talk about things. Maybe you like that and maybe you don’t. Perhaps you’ll want me to shut up, but I’m a believer in using this place to talk about real shit. I think it helps. I think it is really useful to find others who have been in similar situations or are in similar situations.
Like I said, I’m sorry you have to deal with this. I wish you the best possible for the rest of your life. Life is worth hanging onto as tightly as you can, I think. It is also worth learning how to be at peace with what is happening, even as you fight it. I imagine it’s a delicate kind of balance, and not one I feel capable of at the moment. However, I wish you the best connections with those you love and those who love you for as long as it is possible. It is too hard without that. The good news, though, is that there is a lot of love out there to give you. Some of it even comes from places like fluther.