Oh please let me chime in. There is a disabled child I know very well and watched grow up. He was born with spina bifida. He got his first wheelchair when he was 3 and now is 18, still wheelchair bound. He has had surgeries, he has to do medical procedures every few hours like bladder catheterization, he dealt with bowel incontinence most of his life that made going to school all day very hard. He would develop decubitus ulcers on his bottom and have to be home schooled until they healed.
Every time we would drive through an intersection of people waving buckets at us for “handicapped kids” it would make me mad. We couldn’t get anyone to help. The Lion’s club told us they “just buy glasses”. We took him to Shriners and they told the parents there’s no use giving the kid any treatment because he’d be too retarded to walk, (he was 3) and they sent him away with nothing but inserts to put in his shoes to keep them straight. Oh and they billed medicaid. The kid is 18 now and made a 32 on his ACT.
The places he got the most help was 1. from the state through ssI and medicaid, 2. his school that offered speech and physical therapy at school and things to help him in the classroom and
3. Ronald McDonald House children’s Charities
4. Children’s Memorial Hospital of Chicago
5. The saddest. but most helpful place. The pediatric ward of the Rehab Institute of Chicago.
6. And most awesomely, neighbors and friends. Community members, neighbors, people that saw the kid every day, noticed he had no wheelchair ramp and his mother had lift him to get him in the house. Regular people, not an organization… but a long haired hippy guy named Bill and his friends, showed up and built the kid a wheelchair ramp. The kid fell out of his wheelchair on a chicago sidewalk, and a hispanic man helped pick him back up and put him in his chair. He asked for the kid’s address. I don’t know who that man is, but soon after, a playstation arrived in the mail with a note from the guy. But he didn’t sign it or give his return address.
The child’s family launched a lawsuit against a local charity that was getting donations for special needs kids but refused to help him. I can’t remember the name of the charity. The charity finally agreed to let him have some physical therapy, but again billed medicaid for it and the therapist was unkind and awful to the kid.
The worst part, is these charities that would ask us for money on the corner or waving buckets would have the nerve to ask us to donate while we were with the kid!!