@Flavio What makes a doctor trust-worthy?
I hang around with a lot of bipolar people, and they are constantly complaining about how doctors condescend to them and don’t listen to them. I think the communication gap goes both ways. Why would you trust someone who acts as if they think you barely have half a brain?
Since the doctor is trained and has the responsibility of putting that knowledge to work, I think the onus is on him to build trust with a patient. If the doctor expects them to divulge everything without building trust, that doctor isn’t likely to be very successful, I think.
There are a lot of things doctors know and I think they take it for granted that patients know these things as well. Most patients don’t. The diagnosis is a bit of a surprise to them. They don’t research it before hand or even afterwards.
They don’t know that you have no idea which drugs will work for any individual patient. They don’t know that it could take years and more than a dozen different drugs to get to something that works. They don’t know how important therapy is. They don’t know that therapies are also not one-size-fits-all and that they may have to shop around to get someone they can work with.
Of course, this is all compounded by insurance and poverty issues. The Medicaid doctors often have to work too hard to spend time getting to know a patient. Patients on Medicaid or other insurance plans sometimes have no flexibility in finding a doctor or a therapist who works well with them. Finding an advocate to help you through the health care system isn’t easy.
A lot of patients have been screwed by a lack of insurance and a lack of access, Maybe they’ve been hospitalized and treated even worse in the hospital—locked up like prisoners or children. They may be paranoid out of their minds, or hallucinating, but they still are human beings with human feelings and their paranoia is exacerbated in some situations.
You think that person is going to trust you when they see you after being hospitalized? Hell no! That person is going to try to manage you, telling you only what they think they need to in order to stay out of the hospital. Besides which, they are still sick. Maybe they still want to kill themselves. Maybe they are ashamed of that. Maybe they are ashamed of being sick, as you pointed out.
It’s your job, doctor, to build that trust that is so necessary. The patient is in no condition to think about that, most of the time. You feel useless and helpless? Well, I think that’s a symptom of a chasm between you and the patient, and rather than becoming less motivated, perhaps you could redouble your efforts to deal with that particular issue. It’s the most important one. Expecting a sick person to just trust you—I don’t know. Makes me wonder what they teach in med school.
I’ve never been hospitalized. I’m lucky. Once my shrink asked me if I wanted to be hospitalized, and I reacted with a vehemence that shocked me. I never want to spend time there. Ever. I’ve seen the impact that unmanageable bipolar has on people. I know how they feel. Every time someone new comes to the group, I do my best to share what I know with them. Often it’s the first time they’ve heard much of this stuff. It’s….. (shameful, tragic, obscene—the word I want eludes me—side effect of my meds and my age).
Mental health costs patients more. More out-of-pocket. Therapists can demand their entire fee, not just usual and customary because there aren’t enough of them and because insurers don’t have enough on their panels. Mental health parity will help a little, but probably it will just drive up prices more, as therapists figure out that insurance is paying more now.
It’s not just doctors, then, it’s the health care system that breeds mistrust. If you want your patients to trust you, you’ve got a lot to overcome. People are used to being screwed by the health system. It’s no wonder that they hold back. The ones that don’t hold back are the amazing ones. They are to be admired in some ways, but in others, perhaps they are being too foolish.